Facebook

https://www.facebook.com/pages/Sassy-Aspie-Mom/117289368463117?ref=hl

Monday, September 23, 2013

Not our first rodeo...the dreaded IEP meeting




We walked into the school like every other day of every other scheduled IEP meeting. This was not our first rodeo, so the nerves were not as heightened.  We have been dealing with these deflating meetings for 7 years now, so we were more than ready to take on whatever was thrown at us.

Thousands of thoughts run through my mind every year before these meetings take place. I have flashbacks of when Hunter was 5 and was diagnosed with Aspergers and ADHD. The feelings of disbelief and fear still seem very fresh.  However, experience has also brought a feeling of confidence. Now, I walk into these meetings ready to fight for my kid. I show respect to these wonderful people who have chosen this honorable profession. I truly listen to what they have to say and believe that they want the best for him. I also know that no one knows him better than me. I am his advocate. He is my heart. I am his mom, and I owe him the best I can give him.

I have learned through the years that every stage of his growth will bring new challenges and these meetings usually bring them to the forefront. They have historically been the constant, never ending conversations of everything that is wrong with our son. His handwriting is bad; his attitude is bad; he lies constantly; he talks in class; he doesn't respect authority...you name it, we've heard it.

When I walked into the meeting this time, something seemed different. The teachers were all smiling. The meeting began with his resource teacher talking about what a wonderful child Hunter is and how pleasant he is every day. What? Who?

Next, the English teacher told us how sweet he has been to her, and that his handwriting had been a concern, but now he was using the computer and it was working out great!

By now, I felt like I must have been dreaming. His history teacher began by saying that Hunter is so intelligent and is actually asking questions at a collegiate level. He gave us ideas of books Hunter should read, and told us to feed this knowledge. I felt pride in my heart.

His Science teacher began by saying what a pleasure Hunter is and said he is doing great. I smiled and must have had a look of relief on my face because then she said, "Maturity is a wonderful thing," and she smiled at me in a very knowing way.

His speech teacher said he is doing great. His psychologist said he is way ahead of his goals. All of the teachers said he speaks at appropriate times during class. He participates in class. Suddenly, the meeting was over. That was it!

As we walked out my husband looked at me and said, "What the hell just happened?" I smiled and said, " I was just thinking the same thing!"

Don't get me wrong, I know this is not the end of the battle. This weekend alone had enough challenges for 10 families, but there is progress. Seven years ago, we couldn't see any hope. There was just that stifling, unknown feeling. There was no knowledge or experience. Now, things are different! There is still fear. There is still frustration.  There is still so much unknown, but there are bright moments that give us hope that next year might be even better yet!

This wasn't our first rodeo, it won't be our last, but it was our best by far!





Friday, September 13, 2013

ROAR

We had our annual IEP meeting for Hunter yesterday. I have to admit that like every year, I was a little on edge. Katie Perry's new song "ROAR" has been my theme song all week. Every single time that song came on, I would crank it as loud as I could and sing at the top of my lungs!! (I'm sure I got more than a few looks driving my "Mom wagon".) Anyway, for all of you Moms and Dads out there gearing up for that annual meeting to fight for your kiddos...

Let's "roar louder than a lion" and let our voices be heard!!!





I used to bite my tongue and hold my breath
Scared to rock the boat and make a mess
So I sit quietly, agreed politely
I guess that I
forgot I had a choice
I let you push me past the
breaking point
I stood for nothing, so I fell for everything

You held me down, but I got up
Already brushing off the dust
You hear my voice, your hear that sound
Like thunder, gonna shake the ground
You held me down, but I got up
Get ready cause I’ve had enough
I see it all, I see it now

Chorus:
I got the eye of the tiger, a fighter, dancing through the fire
Cause I am a champion and you’re gonna hear me roar
Louder, louder than a lion
Cause I am a champion and you’re gonna hear me roar
Oh oh oh oh oh oh
Oh oh oh oh oh oh
Oh oh oh oh oh oh
You’re gonna hear me roar

Now I’m floatin like a butterfly
Stinging like a bee I
earned my stripes
I went from zero, to my own hero

You held me down, but I got up
Already brushing off the dust
You hear my voice, your hear that sound
Like thunder, gonna shake the ground
You held me down, but I got up
Get ready ’cause I’ve had enough
I see it all, I see it now

Chorus:
I got the eye of the tiger, a fighter, dancing through the fire
Cause I am a champion and you’re gonna hear me roar
Louder, louder than a lion
Cause I am a champion and you’re gonna hear me roar
Oh oh oh oh oh oh
Oh oh oh oh oh oh
Oh oh oh oh oh oh
You’re gonna hear me roar
Oh oh oh oh oh oh
Oh oh oh oh oh oh
Oh oh oh oh oh oh
You’re gonna hear me roar
Roar-or, roar-or, roar-or

I got the eye of the tiger, a fighter, dancing through the fire
Cause I am a champion and you’re gonna hear me roar
Louder, louder than a lion
Cause I am a champion and you’re gonna hear me roar
Oh oh oh oh oh oh
Oh oh oh oh oh oh
Oh oh oh oh oh oh
You’re gonna hear me roar
Oh oh oh oh oh oh
Oh oh oh oh oh oh
Oh oh oh oh oh oh
You’re gonna hear me roar

Katy Perry - Roar (Official)

Tuesday, September 10, 2013

Waiting for the storm to pass



I dropped him off at school this morning and watched in my rear view mirror as he slowly walked to the building.  I watched my tall, lanky, pre-teen boy walk into the school building with a frown on his face. He looked defeated. He looked unhappy. He looked like the weight of the world was on his shoulders. What happened to my smiley, happy little boy.

Our evening had been spent trying to motivate him to get his homework done as he yelled at us at the top of his lungs about not having enough Minecraft time. His squeaky, ever changing voice would crack as he screamed at us about how mean we are to him. Then, the screaming would instantly change to talking about us under his breath. Then we began arguing about the fact that he had to take a good shower because that is part of growing up (this is a nightly issue).

Our morning was filled with this sluggish pre-teen who wouldn't get out of bed, wouldn't get dressed, had to be reminded to brush his teeth, put on his deodorant and get his bag ready for school. Then, he was completely silent in the car during the ride to school as he sat and read his comic book and ignored me

I was once told in an IEP meeting that raising a teenager with Aspergers is10 times harder than raising a teenager off of the spectrum. I don't know if this number is accurate, but I know that the daily stress our family is under right now makes that number seem very real.

Most days I try to laugh at it and try to keep things in perspective. He is a teenager. These are tough years. I get it! We will get through this. Some days are almost unbearable. I want my little boy back. Days with him have not been easy with him for a long time. Mornings have always been tough. Homework has always been a struggle. This, however, is a whole new ballgame.

I think the hardest part of the whole thing is watching my son seem so confused. The mixture of the hormones; and the changes his body is going through; and the stress that homework puts on him; and the middle school drama; and the OCD behaviors he is now experiencing;  they have all combined in his 5'8", 100lb body to cause a raging storm. It is a storm that is unmatched. There is no shelter from it.

As his mom, I just want him to be able to have a happy life. I want him to fulfill his dreams. I take the advice of those older and wiser than me when they say that this storm will pass. I pray that they are right. I hope that this storm passes and that one day I will look back at these days as a distant memory because that unhappy boy will be a strong, happy, confident man.

Friday, September 6, 2013

I'm going to miss this

Today was Grandparents Day at Grant's school, and it was his first year EVER not to have one of his grandparents there. This was definitely one of the many times we wish we weren't 14 hours away from family.

 He has been upset all week about not having anyone there, so I tried to buffer the situation by showing up at 11:30 with a Sonic bacon cheeseburger and a root beer. (This usually eases his pain from just about anything.)  When I arrived, I saw him walking down the hallway with his class. Some of his classmates already had their grandparents with them. He looked really sad. I called his name, he turned around, and there was an instant smile.We sat with one of his friends and his grandpa. He ate his burger, laughed with his friend, and genuinely had a good time. He was okay. My heart was a little lighter.

When it was time for me to leave, I took a quick "selfie" picture of the two of us on my phone, and walked him out of the cafeteria. He had recess, so I took him to the doors to go to the playground and whispered "I love you" to him and blew him a kiss. He did a half- puckering of his lips and ran out the door as fast as he could. My heart hurt and sang all at the same time.

My little guy is growing up. He still needs me, but just not as much. Actually, he needs me a little bit less every day. That's a good thing...right?  I know, I know, it's a great thing. It means I'm doing my job as his parent. He is becoming more and more independent and that is great!

I left the school feeling a little blue. I started my car up and this song was playing:

Trace Adkins "Your going to miss this."

http://www.youtube.com/watch?v=igm2iGvo-us

I cried all the way home. Yep, that's right, I had a sappy mom moment. My baby is growing up. He will be 8 next week. With every passing day I realize that with all of my heart I am definitely going to "miss this." I already know from having a 12 year-old that this time goes by so quickly, and soon they don't need you at all (or at least they think that).

Right now, I'm going to go pick him up from school, grab a book, and try to cuddle with him in the chair while I read to him. I'm going to wrap my arms around him and bury my head in his hair and savor this moment because it will be gone before I know it.


Trace Adkins - You're gonna miss this *** with lyrics!

Thursday, September 5, 2013

Dazed and Confused

There are weeks like this that I want to throw my hands in the air and say, "I quit!!" I'm exhausted!

My second grader comes home from school, tells me his homework for the week, gets whatever he needs out of his bag and hops to it. He doesn't always like it, but he gets done with very little effort. He wants to do a good job. I try to help him as much as possible. With him,  it can actually be quality time spent together. Last night we designed swim trunks for a paper frog. I have to admit that was kind of fun.

My 7th grader, on the other hand, just doesn't understand at all!! As the schools and teachers are wanting him to gain more independence because he is in middle school, he is fighting tooth and nail. The Aspergers + hormones = major attitude. Due to middle school having multiple teachers, I don't have to keep up with one class, but six. I have to communicate with 6 different teachers. Every night is filled with questions about homework from me and lies and "I don't knows" from him. He will lie at all costs because homework is just not important to him. This starts my sleuthing. I scan each teachers website looking for what I need. I send out emails to ask questions. I go through his bag looking for clues.By the time I have it somewhat figured out, I'm mentally exhausted. This daily grind starts my "dazed and confused" feeling that lasts the entire school year.

 I really find myself on that line of how much to help him. Do I keep fighting this battle or let him fail? How long do I fight it? Isn't it my job to help him succeed in life? I'm his mom. It's my job...right? Am I holding him back by continuing to help?


I obviously don't have this figured out. I would love to hear all of your thoughts and similar concerns. Are you "dazed and confused" too?
#dazedandconfused
#autism