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After meeting this mom, I began to reflect upon my own
experience. I remember being scared, and
confused, and feeling hopeless at times. I remember looking for many answers I
could not find. I remember feeling a loss for what I wanted for my child. I
knew that life would be tough for him and it hurt. I knew that my job as a
parent would be vastly different than I had imagined. I remember watching my husband question
“why?” in anguish as he went through so many emotions. He fought with denial,
and pain, and anger. I fought with trying to fix it all and heal the pain we
were feeling.
I wish I could go back 8 years and tell myself so many
things. First, I would tell myself to breath and take it all in. Enjoy your
little boy for everything he is right now because he will only be little once.
I would tell myself that life will be hard so many days, but there will be some
great days along the way, so take it all in stride. Soak up all the knowledge
you can from other parents who have already gone through it. Their information
will help more that any text book or doctor ever could. Most importantly, I would tell me to stop
being so hard on myself because I was doing the best I could. Don’t listen to the criticism. Only listen to
the voice in your heart telling you to keep going. In the end, it would all be
okay. It won’t be easy, but it will be worth it.
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